Support for Advanced Prostate Cancer Caregivers

 

If you are a caregiver for someone with advanced prostate cancer, you understand the physical and emotional toll this disease takes on your loved one. A lot of men living with advanced prostate cancer don’t feel comfortable asking for help, but just knowing you are there can mean so much to him. Here are some other tips to help you be a supportive caregiver:

  • Be an advocate—It’s easy to forget certain questions during appointments, so you should be there with him to ask questions on his behalf, and take notes
  • Help keep him positive—Put on his favorite TV show, look through photo albums, play his favorite music. All of this can help him keep a positive mindset
  • Connect with other caregivers—Look online for caregiver support groups and talk with other caregivers in your community
  • Help him eat smart—Avoid high-sodium foods and animal fats. Use olive oil and increase your consumption of fresh fish, fruits, and vegetables
  • Take time for yourself—Your health and happiness can go a long way toward your loved one’s well-being as well. Don’t forget to set aside an hour or so a day to do the things that you love

 


Inform yourself to help empower your loved one

Another important way you can lend support to your loved one is to educate yourself about the disease and the available prostate cancer treatment options. Chances are your loved one is going to request—and respect—your input, so the more information you have, the more informed decisions you can make. You can start by:

  1. Learning about the various advanced prostate cancer treatment options and see how PROVENGE works differently.
  2. Reading about the potential benefits and side effects associated with PROVENGE.
  3. Finding a PROVENGE provider and talking to your loved one about scheduling an appointment.

Caregiver resources

American Cancer Society
Tips on how to succeed as a caregiver from the American Cancer Society.

Caregiver Action Network
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Caring.com
A good place to find expert advice on caregiving.

CaringBridge.org
CaringBridge allows you to connect with friends and family, using a personal, protected site.

Caring Connections
Gives free resources, information, and support for those serving as caregivers.

Family Caregiving 101
This site provides assistance, answers, new ideas, and helpful advice—for caregivers and their loved ones.

Hope Connections for Cancer Support
A helpful resource that offers education and support for those with cancer and their caregivers.

National Alliance for Caregiving
This site offers educational resources, webcasts, and conference materials on caregiving.

National Cancer Institute
Practical and supportive information to help caregivers cope while caring for a loved one with cancer.

NIH Medline Plus
This site provides educational resources, links to research, and health information and care tips for the caregiver.

Additional Resources

Patient Resources

Find professional societies and other organizations that can help during your prostate cancer journey.
Learn more ›

Who Is PROVENGE For?

PROVENGE® (sipuleucel-T) is a prescription medicine that is used to treat certain patients with advanced prostate cancer. PROVENGE is made from your own immune cells.
Find out if PROVENGE could be right for you ›

Find a PROVENGE Treatment Center

INDICATION

PROVENGE® (sipuleucel-T) is a prescription medicine that is used to treat certain patients with advanced prostate cancer. PROVENGE is made from your own immune cells.

IMPORTANT SAFETY INFORMATION

  • Before getting PROVENGE, tell your doctor about all your medical problems, including problems with your heart or lungs, or if you have had a stroke
  • Tell your doctor about all the medicines you take, including prescription and nonprescription drugs, vitamins, and dietary supplements
  • PROVENGE is made from your own immune cells, collected approximately 3 days before each scheduled infusion of PROVENGE. The collection is called “leukapheresis” (pronounced loo-kuh-fuh-REE-sis). You will get PROVENGE in 3 intravenous infusions (put into your veins), about 2 weeks apart. Each infusion takes about 60 minutes. You will then be monitored for at least 30 minutes. Your doctor will give you a schedule for your cell collection and infusion appointments. It is very important that you arrive on time for your appointments
  • The most common side effects of PROVENGE include chills, fatigue, fever, back pain, nausea, joint ache, and headache. These are not all the possible side effects of PROVENGE treatment
  • PROVENGE infusion can cause serious reactions. Tell your doctor right away if you:
    • Have breathing problems, chest pains, racing heart or irregular heartbeats, high or low blood pressure, dizziness, fainting, nausea, or vomiting after getting PROVENGE. Any of these may be signs of heart or lung problems
    • Develop numbness or weakness on one side of the body, decreased vision in one eye, or difficulty speaking. Any of these may be signs of a stroke
    • Develop symptoms of thrombosis which may include: pain and/or swelling of an arm or leg with warmth over the affected area, discoloration of an arm or leg, unexplained shortness of breath, chest pain that worsens on deep breathing
    • Get a fever over 100°F, or redness or pain at the infusion or collections sites. Any of these may be signs of infection
  • Tell your doctor about any side effect that concerns you or does not go away. For more information, talk with your doctor

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Click here for full Prescribing Information.